Hiya everyone
Im so sorry i have not posted for such along time, think about you guys everyday but havnt been able to pluck the courage up and fill you all in on the continueing battle, as i have said before it hurts writing this down, but here goes
OH finished his treatment at the end of April, but was kept in hospital for a week longer due to complications with the side effects, the main one was his white blood cell count going very very low, so he was in isolation that was all sorted out and home he came, very tired and very sore, we have a continious trail of doctor,district nurses, macmillan nurse, and speech and swallowing nurses coming in to check OH out doing bloods and such like checking meds and stuff, he was sleeping alot and no energy at all, he found it hard work just doing a 15 min stroll with the dogs, which is heartbreaking when he used to be so fit, walking, cycling, ect ect,
He is still on nil by mouth, he has choking sessions when trying to swallow, sips of tea, probiotic yoghurt drinks are about the easiest he has found, a little bottle of that takes about half an hour to drink.
The second week of him being home his bloods were taken and the results came back his white blood cell count had dropped again so off back to hospital he went, for a check and he was admitted, chest infection, and throat infection, intavarenous meds and antibiotics, he was in for a week and he came home last wednesday.
He is doing ok at the min, still nil by mouth which he find very frustrating and annoying being hooked up to a food pump twice a day, he is still in pain and still on morphene painkillers, along with an array of other painkillers, antibiotics, mouthwashes,
Swallowing, coughing and talking all hurt to a degree, but his energy level is up a wee bit he can now manage a half hour walk with me and the dogs, which is nice.
We are continuing to fight this as hard as we can, it is hard, it does hurt, it does make you angry, it makes you want to cry, and shout, but were handling it and enjoying spending time together.
Im physically, mentally and emotionally exhursted, but dont feel i can moan about any of it as it is not me with the big C, im the lucky one.
The animals and small holding are keeping me busy i dont know where the days go, plus it takes me twice as long to do jobs with my back, but were getting there the veg plot is planted and being battered by the winds!!!!!!!!!!
Both gardens now have ducks in them, which are lovely. the dogs, cats and horses are all great and give me the strength to keep going, and keep me sane, well sane-ish!!!!!!!!
The OH is back at the hosp on the 15th june for his review, so the consultant can check how things are going but i dont think they can scan him until july to find out exactually what is happening with the tumor, if it has been successful or not, such a long wait but the radiotherapy is still in his system, and that would effect the scan results, so wait we must.
I have got my referral date to see the consultant to discuss back surgery, that is on the 23rd june, so that should be interesting. But the OH is more important at the moment.
I hope you lot are all ok, i will try to read through everything at some point and see what you have all been up to, but just at the moment what with OH, dogs, horses, cats, hens, ducks, house, holiday cottage, and land i dont seem to have much time.
Take care all of you, been missing you all loads
i hope this post makes sense
Faith and OH
Topic: The Battle Continues (Read 5698 times)
