The Accidental Smallholder Forum

Community => Coffee Lounge => Topic started by: MiriMaran on February 05, 2010, 08:28:28 pm

Title: Update on Harry
Post by: MiriMaran on February 05, 2010, 08:28:28 pm
Thought I'd start a new thread as I don't like the "Why I've been keeping a low profile" title!!

Just to re-cap Harry's behaviour had been nose diving at school since they introduced the home/school book.  The etachers had been discussing with Harry what they were going to write in it, Hee soon sussed that if he was naughty he would get one-to-one attention whilst they adult decided what to write in the book.  It has now changed so that the home/school book is between the adults and Harry now has a smiley chart.  The chart is broken up into four for each day and he gets a smile = good, straight mouth = OK behaviour and sad mouth = unacceptable behaviour.  The behaviour isn't just being naughty, but ties in with the IEP targets of not interrupting and following instructions when first asked.  His smiley chart is photocopied at the end of school on Fridays so we can see haow he has got on.

WELL AM I PROUD OR WHAT?!!!  This week there were 3 sad faces, one straight and all the rest were smiles - yipeeeee!  I am so so proud of him.  Also the teacher called me in today to tell me that Harry had been standing in the lunch queue today and the boy he has been having problems with started trying to push Harry out of the queue, shouting "get to the back of the queue".  When Harry stood his ground the other lad starting kicking him.  I'm so impressed, Harry didn't retaliate once.  Apparently the other lad got sent home from school later for spitting at the teacher!  I'm so pleased with Harry, but just hope to God he doesn't start copying this other lad any more than he has done already.
Title: Re: Update on Harry
Post by: little blue on February 05, 2010, 08:39:42 pm
bless him, it sounds like a much better plan to give him a more age appropriate chart and keep the rest more between the 'grown ups!'

Did the school give any consequence for the boy bullying Harry?  Cos it sounds like thats what it is!
Title: Re: Update on Harry
Post by: MiriMaran on February 05, 2010, 08:48:36 pm
What happend today at school is an exact repeat of what I saw at the Fottball party that they were both invited to.

I didn't ask whether S got punished - I was just so pleased about how well Harry reacted it never occured to me to ask.  I can't really ask now though can I?  I suppose I could write something in the Home/School book along the lines of "Were there any consequences for S as its important for Harry to see and learn by watchng others."
Title: Re: Update on Harry
Post by: ukag0972 on February 05, 2010, 08:51:33 pm
Go Harry!!!
Title: Re: Update on Harry
Post by: HappyHippy on February 05, 2010, 09:10:56 pm
I'm pleased that they've changed the discussion part and are giving him smilies instead.
As for the lunch queue - well done for Harry  ;D ;D ;D Hopefully the school will realise (if they've not already) that this boy is perhaps causing some of Harry's behaviours and will keep a much closer eye on him - he does sound like a bit of a brat ;)
Here's a wee update on Kaitlin (hope you don't mind me butting in ;))
She's STILL waiting for the appointment with the ADHD lot  >:( but through the people who've been to see her at school there has been a referral sent to a forum (probably has another name, but I'm afraid I don't know it) they will be meeting soon to discuss whether she can be offered a place at one of the 3 ASD centres in the area. If she gets it she'll be in a class of 6, with at least 2 teachers. But get to mainstream at play and lunchtimes and for assemblies etc - I'm hoping she'll get it, but as there are only 18 places for the whole of South Lanarkshire it might not happen  :( I'll find out around Easter - fingers crossed.
Title: Re: Update on Harry
Post by: MiriMaran on February 05, 2010, 09:54:28 pm
Wow, that will be brill if she gets that - fingers crossed for you.  We are also still waiting for Harry's referal.  Its a long drawn out process isn't it and we're only at the beginning!!
Title: Re: Update on Harry
Post by: MiriMaran on March 07, 2010, 04:17:12 pm
No news on Harry's refferal yet.  He saw a Cranial Osteopath last Thursday who said he had alot of tension inside his head and did a bit of work on him.  She has given me Bach Flower Remedy Wild Oats and he's to go back in a months time.

His behaviour is on the slippery slope at school and he has now started nicking things off the teachers desk, just small stuff like blu-tack and paperclips, but understandably they are not very impressed!  He does seem to go in a cycle and we're on the downward spiral at the moment.  At least we know it will pick up again.

Harry had an away match with Rugby today and we shared a car with his friend.  By the time we got to Rugby Harry was high as a kite and stayed pretty high.  Anyway, one of the coaches came storming up to me infront of all the other parents and started saying things like "I can't do it.  I can't carry on coaching Harry.  He is too disruptive.  I can't cope.  I'll have to talk to the other coaches because I can't coach Harry anymore.  I just can't." I was dumbfounded.

Recently, I was told my children couldn't continue with one of their after school activities as other children on the waiting list needed a turn.  It is called Boccia.  Its like French Boule and I wanted Harry to do it to help him learn patience and turn taking.  After a few weeks it dawned on me that that whilst my children had only done it for one term there were other children that had been doing it for over a year and they were still in the club.  So I asked the teacher in charge of the Boccia club why mine weren't in the club.  She said that it was really set up for children who have co-ordination problems as it helps them and that one child in particular, who has Cerebal Palsy, needed her friends around her.  She also said she couldn't have more than 20 children at a time.  So I said "OK at least it wasn't my children's behaviour."  "They were the worst behaved," was her quick reply.  She then went on to explain that she doesn't get paid to do the club and that she can't spend time with disruptive children.  So I guess I now know the real reason for them not being in the club.I should have said that Harry was very good friends with one of the children the group was initially set up for and doesn't he need his friends around him like the Cerebal Palsy girl!  However, I didn't I left with my tail between my legs feeling kicked in the stomach.  And now its happend again at Rugby - I feel like stamping my foot like a petulant child - it all feels so unfair.
Title: Re: Update on Harry
Post by: Rosemary on March 07, 2010, 04:44:30 pm
Oh, MM, I'm so sorry. It all must be so dispiriting for you. You're doing loads though and some things will help. You don't really need comments like that though.
Title: Re: Update on Harry
Post by: MiriMaran on March 07, 2010, 04:48:20 pm
I just feel I'm bending over backwards, trying my best and people just keep kicking me in the stomach.  Part of the problem is that I'm trying my best, but am not equipped and don't have the knowledge or experience to deal positively with Harry's behaviour.  I'm desperately hoping that the NHS will give me some pointers when his referral finally goes through.
Title: Re: Update on Harry
Post by: juliag on March 07, 2010, 05:23:00 pm
I really feel for you and harry. There are not really words are there, you must be speechless so often. But well done both of you for the steps made. I am still shocked at this other boy, he obviously knows which buttons to press and is determined to press them. What a horrible child and from what I remember from the previous thread a horrible mother too!  You are welcome here anytime (not that you would want too, bloody madhouse!) and my disruptive son and your disruptive son can charge around , build treehouses and generally do all the things 'boys' do together!!!!  ;)
Title: Re: Update on Harry
Post by: little blue on March 07, 2010, 05:26:10 pm
So sorry to hear that things arent going so well... its such a shame that people can't just talk to you before they decide they can't manage Harry.
He's such a lovely, lovely boy.  it makes me cross on your behalf when things like that happen!

Remind me what the NHS referal is for? I'd recommend pushing for an occupational therapy assessment to help give H & you some coping strategies - and it might reveal some of the reasons for his behaviours.

The taking stuff from teacher - does he do it to have something to 'fiddle' with, or to hide it, or for the attention he gets when he's found out?

just remember, it isnt your or anyones fault.  And your boys are both so lovely!   x
Title: Re: Update on Harry
Post by: doganjo on March 07, 2010, 11:14:48 pm
Can I echo that for Karen's two little girls - they are lovely and very loving girls. To be greeted at a dog show like a very special aunt they hadn't seen for a while turned a number of heads - and great big smiles.  To have such super cuddles fromchildren I'd never met before was absolutely charming!  Thank you so much for bringing them HH and brightening not just my day but some of my friends too! ;D ;D
Title: Re: Update on Harry
Post by: HappyHippy on March 08, 2010, 10:58:05 am
It was my pleasure Annie  ;D
We actually had a really good day out - Kaitlin was behaving and it makes such a difference !
Miri - hang in there  :-* :-* :-*
Kaitlin does the lifting things off the desk too and despite getting into trouble it has no effect on her - she'll do it again if it's something she wants. We also had the situation where she had started dance classes (she LOVES dancing) but after only 2 weeks the teacher had said she wasn't doing well and it would be better to keep her home :'(
Sorry if this bit sounds negative - but I wouldn't put too much faith in the good ol' NHS. The info they have given me thus far is very basic general parenting stuff - stuff we do already, I really think I could probably tell them stuff they don't know because of the amount of research I've done  ::) Even a diagnosis (when it EVENTUALLY comes) won't make any difference as such to how she is treated or how she behaves. But maybe that's just in my area - hopefully yours will be better.
Keep us up to date with things - it's good about the crainial stuff, hopefully you'll see a difference there, keeping my fingers crossed for you xxx
Title: Re: Update on Harry
Post by: MiriMaran on March 08, 2010, 08:24:51 pm
Thanks everyone.  I spoke to one of the other Rugby coaches who has a child similar to Harry and he was pretty shocked and said he would sort it out.  He said it goes against the ethos of the club and must get sorted out.  I'm hoping that I will get an apology next Sunday.  I'm not going to make an official complaint unless anything like this happens again - I think the coach should be given a second chance.

I got a bit of a lift this morning - Harry has been invited to tea with one of the girls in his class.  He has been madly in love with her since she joined the class in September and is always giving her little gifts, like photos of the animals, which she has in her bedroom.  He doesn't get invited out very often so this is a big occasion.  Oliver is going to invite one of his classmates for tea whilst Harry is away as we have found that twos work better than threes!

Its interesting what you said Ruth, a few people have said to get a referral to an OT, but I think our referral is to a Clinical Paedeatrican.  To be honest it seems so long ago I can't quite remember!
Title: Re: Update on Harry
Post by: jameslindsay on March 08, 2010, 08:26:32 pm
Thats great news Miri, here's hoping it's the first of many invites for him. :)
Title: Re: Update on Harry
Post by: MiriMaran on March 08, 2010, 08:29:45 pm
Harry is totally smitten.  Oliver is also smitten with a girl in his class.  Apparently she squidged his bum and that means she fancies him!  I'm not sure I approve of bum squidging amongst 7 year olds!! ;D ;D
Title: Re: Update on Harry
Post by: little blue on March 08, 2010, 08:48:45 pm
Its interesting what you said Ruth, a few people have said to get a referral to an OT, but I think our referral is to a Clinical Paedeatrican.  To be honest it seems so long ago I can't quite remember!

Would you like me ask the Ots at work how best to get a referal? cos Im not sure!
I know in the past they have done private assessments but it would likely cost!
A clinical paed will hopefully cover alot of stuff, but as has been said before - you might find that you already do alot of what they say...

Hope Harry enjoys his 'date' !! It'll do him the world of good
x
Title: Re: Update on Harry
Post by: MiriMaran on March 08, 2010, 08:52:18 pm
I'd be really grateful if you could talk to your OT's.  Thanks for the offer.  Apparently the woman Harry has been reffered to, who works in Belper, is very good.
Title: Re: Update on Harry
Post by: little blue on March 08, 2010, 09:00:23 pm
ask me later in the week if I've done it!  Think I'm getting more forgetful, wouldnt have thought it was possble!

tell the boys we are going to build brand new hutches for the baby guineas - theyve been living in the cold conservatory rather than outside at minus 6.  Ive managed to "obtain" some free wood, plenty to keep us busy.  But were caught up in rat-catching over the weekend so guineas have to wait!
Title: Re: Update on Harry
Post by: MiriMaran on March 08, 2010, 09:09:45 pm
Ah the joys of rat-catching!  We have a female rat living (and breeding) in some ivy near our house.  She scuttles out to collect all the fallen food from the bird feeders, but only seems to come out when the gun is safely stowed away.  I can't quite work out where the nest, but I think she's on her second litter this year.  Henry caught one of the last litters babies when it left the nest.  We will eventually get her, but can't put poison down as the dogs are always snuffeling around the area.
Title: Re: Update on Harry
Post by: Wizard on March 11, 2010, 08:33:54 am
Hey up Miri Is the 2 black and white birthday presents running around MiriMaran land.The weeks up ez he done it or ez e done the veggie plot ??? ??? :D ;D :farmer:
Title: Re: Update on Harry
Post by: MiriMaran on March 11, 2010, 04:18:48 pm
The Landy has not even been looked at.  Good grief, I'm a patiant woman!  Maybe you should come down for a visit?!
Title: Re: Update on Harry
Post by: Wizard on March 11, 2010, 04:44:44 pm
By heck Miri he is now livin on borrerd time int e? :o ??? :D I hope  :love: still applies XX
Title: Re: Update on Harry
Post by: MiriMaran on March 11, 2010, 08:17:53 pm
I've just read your post to my OH and he says to tell you that its running well now, but he still needs to Waxoyl the chassis.  I think he's improved the running by making the engine run a bit faster.

Do you think I'll get it back before next winter?!
Title: Re: Update on Harry
Post by: little blue on March 11, 2010, 08:23:32 pm
 ::)     ;)   
Title: Re: Update on Harry
Post by: MiriMaran on March 13, 2010, 09:18:15 pm
Harry had a really bad week last week and seemed to be in trouble all the time, but when my OH and I asked what the context of the behaviour was they didn't seem to know!  At Harry's school one of the punishments is to get sent to another classroom.  Harry got sent to the year 6 class and saw it as a treat not a punishment, which didn't surprise me a bit.  I spoke to one his teachers saying that form of discipline won't work on Harry and please find something more appropriate to him so what did she do - that very same day she sent him to the other Year 6 class!  Arrrgggghhhhh!!

I told this particular teacher that I was feeling very frustrated that we were no further forward with Harry's referral and desperately needed help and felt that the teachers may also benefit.  Well, off she went "I've dealt with children that are far worse than Harry, ones that spit and throw chairs.  We will find a strategy that works with Harry" e.t.c.  I said that be that as it may his lack of concern about consequences and punishment makes him tricky to handle.  What I should have said was "Well how is it we are half way through the academic year and are no further forward," but I didn't.  I wanted to have an adult conversation with her and I suppose I was asking for some support and she just got really uppity and defensive.  I'm absolutely tearing my hair out.  All of you guys and my friends are being wonderfully supportive, but I feel that the professional support that we should be getting just doesn't exist.

The other night I was talking to Harry after his bedtime story asking him to try really hard to do as he's told at school.  Harry with a very serious face said "Mummy he keeps swearing.  Can I use a swear word to tell you what he says?"  Oh I thought, is he about to tell me some story of why he got angry at school.  "Who?" I asked.  He held up his teddy and said "He keeps saying bu88er and I can't stop him!"  Well, I fell about laughing and that was the end of the serious of conversation.

The good news is that Harry danced all night at the school disco with his 'girlfriend'.  He was very well behaved and didn't need to be told off once and also didn't get too overexcited and silly.  We then gave M and her mum a lift home and had a quick coffee at their house.  I found out this morning that they had been up in her room, door closed, kissing!!!  Isn't he a bit young for this?! :o :love: :o
Title: Re: Update on Harry
Post by: HappyHippy on March 14, 2010, 08:16:29 am
"All of you guys and my friends are being wonderfully supportive, but I feel that the professional support that we should be getting just doesn't exist."

This is how I feel too Miri  :-\
Granted there ARE kids who are much worse than Harry or Kaitlin, violent, aggressive etc and maybe they come as higher priority ? But it is incredibly frustrating.
We were told in September/October last year that we would get an appointment to see someone at the child and family clinic within 3 months - we're still waiting  >:(
Title: Re: Update on Harry
Post by: Wizard on March 14, 2010, 04:57:34 pm
I will tell you happy you will get next to no help plenty of fobbing off and the like Get down there and play your face .I'm sorry Mr Baker you cannot see the Princepal.Why not?Well he doesn't see people like you! Oh but you are so wrong I'll bet you he will.So I made a few discrete enquires and was leaning on the lamp post when he came into work next morning.Snag was. He could not go home with out speaking to me because I was sitting on his car bonnet at 17:45 when he wanted to go for tea.I know nothing of your case Mr Baker but I assure you I will tomorrow.I don't know what was said nor to who,but I was called to his office next morning and so were two others.Sort this out and sort it today Mr Baker will report directly to me on the outcome. ??? ??? >:( ;D ;D :farmer:
Title: Re: Update on Harry
Post by: MiriMaran on March 14, 2010, 08:01:27 pm
HH Its so frustrating isn't it.  So many people have told me to nag nag nag and that is the only way to get anywhere, but I'm very non-confrontational.  I have left a message on the answer machine of the person we have been referred to, but haven't heard anything.  I may try again tomorrow.
Title: Re: Update on Harry
Post by: HappyHippy on March 14, 2010, 08:12:17 pm
Frustrating is the polite way of putting it Miri ! That's on the days I only have a mild case of pulling my hair out  :o :o :o
Like you, I'm not one to hassle folk (hubby may disagree  ;)) but I did phone and try to bring the appointment forward - didn't get anywhere, in fact I don't actually think the psycologist I spoke to listened to a word I said  ::) and I was being very nice ;D but got a snooty attitude and basically told to wait my turn >:( Just let them try that when we DO go for the appointment (they may see the bit of my mum in me that I try so hard to suppress ;)) I assume the attitude comes from seeing so many cases where the kids have problems and the parents don't actually give a crap that when they do get someone who has a bit of foresight and sense that they are kinda taken aback. It's a LONG fight - but I'm not done yet  ;)
Hang in there, keep phoning them (or get an email address and drop them a line EVERY week) and keep us all up to date. Fingers crossed your lot are better that mine !
Title: Re: Update on Harry
Post by: MiriMaran on March 14, 2010, 08:15:46 pm
Fingers crossed for you too and I'll let you know how things go.

Harry is being particularly difficult at the moment.  I don't know if its a reaction to the Cranial Osteopathy or 'cause he has Spring fever or what.  Lets hope next week will be better.
Title: Re: Update on Harry
Post by: HappyHippy on March 15, 2010, 08:10:37 am
LOL! Think it must be spring fever - it's affecting Kaitlin too  :-\
She lovingly presented me with a box of chocolates for mother's day yesterday, then while i was in the bath, broke into the bedroom, nicked them and procceeded to share them with her sister. Still, at least she's learning about sharing  ::) ;D
Title: Re: Update on Harry
Post by: jameslindsay on March 15, 2010, 08:17:37 am
LOL! Think it must be spring fever - it's affecting Kaitlin too  :-\
She lovingly presented me with a box of chocolates for mother's day yesterday, then while i was in the bath, broke into the bedroom, nicked them and procceeded to share them with her sister. Still, at least she's learning about sharing  ::) ;D


Little monkey, glad you saw the funny side of it. :)
Title: Re: Update on Harry
Post by: Wizard on March 15, 2010, 08:32:11 am
Thats a nice story James.One of the remaining 4 brought Kath a lovely Orchid but I think it will die it is not warm enough in our house for that sort of plant.Kath is thrilled to bits with it Several Photos has been moved off the side board to make room for it :D :D ;D :-X
Title: Re: Update on Harry
Post by: doganjo on March 15, 2010, 11:23:12 am
Give me their numbers and I'll phone them for you. ::) ::) ::) ::) 

Come on girls this has gone on long enough. You need help with these kids and you are entitled to it.  You pay your taxes same as me or anyone else.  Keep nagging if that is what it takes.  We're all behind you here.  Tell them Granny TAS will be onto them if they don't pull the finger out! ;D ;D
Title: Re: Update on Harry
Post by: Wizard on March 15, 2010, 05:11:08 pm
Look what I posted on the 14th at 4.57 I'll come and hold Annie's hand that will shock em they wont wont us two again and its not funny nor is it mean to be.If they think they can fob you off they will How far have you got up the tree have you seen any one of importance or are you still wrestling the bluddi receptionists?George
Title: Re: Update on Harry
Post by: MiriMaran on March 15, 2010, 08:15:08 pm
I'll give it a couple more weeks and then call the heavys in!!!! ;D
Title: Re: Update on Harry
Post by: ukag0972 on March 15, 2010, 08:21:30 pm
If you've not had an appointment for your referral,  go back to your GP and request he refers you again!
This situation has went on long enough for you and happyhippy! You need to "get balls" when dealing with some of these specialists. You need to keep this in the mind of your GP!
I got the buck passed several times before I finally saw specialists and got the help that jack needed!
Title: Re: Update on Harry
Post by: MiriMaran on March 15, 2010, 08:24:10 pm
I've got another appointment on Wednesday for a different Doctor that everyone tells me is more dynamic.  The one I saw previously is a little laid back whereas the one I am seeing Wednesday has a reputation for getting things done.  Wish I had known this earlier!
Title: Re: Update on Harry
Post by: Wizard on March 16, 2010, 07:58:18 am
Best of luck with the appointment outcome Miri.We've been there done all the things dont forget BE STRONG :farmer:
Title: Re: Update on Harry
Post by: MiriMaran on March 17, 2010, 08:00:19 pm
Ok the Doctor is going to put it through as an urgent referral as I told him Harry is a liability near roads and soils himself at school - which is all true, but it didn't half help to get taken seriously!!

I've also left a message with the school office to ask the Head to phone me so I can request an Ed Psych to assess him in school.

Ooo I've got all assertive today - feels great! ;D
Title: Re: Update on Harry
Post by: jameslindsay on March 17, 2010, 08:12:15 pm
Good for you, hope you won't have to wait much longer. Isn't it a shame that you have to work yourself up in to a state to get something to happen? Fingers crossed. :)
Title: Re: Update on Harry
Post by: doganjo on March 17, 2010, 09:26:48 pm
Well done, that girl!  Hell hath no fury as a mother scorned! ::)
Title: Re: Update on Harry
Post by: little blue on March 17, 2010, 09:51:23 pm
good for you miri !
(My computer is now fixed after a week TAS free... dont know how I managed!!)
Love and best wishes to you all  x
Title: Re: Update on Harry
Post by: ukag0972 on March 18, 2010, 05:40:31 am
Good!!

You need to start, if you haven't, writing things down that Harry does. Things that other kids don't, wee things that you think are "just harry".
Even if you think it's daft, write it, it may be important!!
Maybe try and get your head teacher to write a wee report about harry at school too.

I found this part really hard as it lists your childs faults and shows how bad things are!!

Help should be on the way soon!

Lee x
Title: Re: Update on Harry
Post by: Wizard on March 18, 2010, 07:11:19 am
Well you have at least a start lass.Now change to terrier tactics you have hold shack e'm and don't let go.They give up to get rid of you.Or they do me.Keep at them and when nothing appears to you to be happening. Don't ring them up get round there and play your face.It's far more difficult to lie face to face than on the phone.Or bluddi L shes here again.I had better do something.He /she WILL see you if you want them to or of course run over you and I don't think they have the nerve for that.Keep at them lass don't give them a minutes peace and forget the phone until YOU want to use it for your Harry's benefit Good luck with the next step George XXX
Title: Re: Update on Harry
Post by: HappyHippy on March 18, 2010, 09:16:29 am
OMG Miri ! Whenever you post something else about Harry's behaviour I could cry cause it's exactly the same as Kaitlin. We have problems with toileting too (and despite trying everything, and her knowing exactly what she's doing - it still persists)
I really hope you get somewhere soon - I'm away to give my lot some more hassle now  ;)
Title: Re: Update on Harry
Post by: doganjo on March 18, 2010, 09:50:40 am
I haven't met Harry, but Kaitlin is the most gorgeous wee girl.  I wish you both a huge success with your bairns. My 8 year old grandson is a handful, but more because he is obessive about things(mainly IT games!) than any other reason.  Fairly normal otherwise, luckily.
Title: Re: Update on Harry
Post by: little blue on March 18, 2010, 07:03:43 pm
MM, before I forget...  OT said you really need a GP referal for an OT assessment, via a paedatrician... but they may not do all the sensory stuff that might benefit Harry, so the more info you arm yourself with first, the better!
The LEA might eventually agree to a private assessment (eg at my work) but that will cost ££s
either will probably mean a long wait.

Very much agree with Lee, and the more you can write down, the easier it is to complete all those assessment forms that will come your way!  Even down to your pregnancy and his birth sometimes.
Title: Re: Update on Harry
Post by: MiriMaran on March 18, 2010, 08:45:51 pm
OK I'll start doing a diary.  I spoke to the Head today, but she has said Ed Psych won't go to the school until the Community Paediatrician has assessed Harry.  She has however offered to get someone from Behavioural Support to observe him in the classroom.

Thanks everyone for your kind words.  I feel so much better for doing something, but I guess now I have to wait a week or two before I can start growling again.

HH, we should get our 2 mad children together and see if they can burn each other out!

Ruth, do you still think its worth mentioning the OT to the Community Paediatrician or are you thinking its not suitable for Harry?  Also, do you think its worth paying for a private IQ test for him?  Would it help or will they assess his intelligence levels anyway?

Sorry here I am picking everyone's brains again.  When I try to get info, from the internet, on what direction all of this will go I can't seem to find an answer.  Maybe different authorities do things differently.  I've ordered an ADHD book from Amazon as the blurb about it sounded so suitable for Harry, but its not arrived yet.  At least I can get my teeth into the book when it arrives and feel like I'm doing something.
Title: Re: Update on Harry
Post by: little blue on March 18, 2010, 08:56:09 pm
Ruth, do you still think its worth mentioning the OT to the Community Paediatrician or are you thinking its not suitable for Harry?  Also, do you think its worth paying for a private IQ test for him?  Would it help or will they assess his intelligence levels anyway?

I've ordered an ADHD book from Amazon as the blurb about it sounded so suitable for Harry, but its not arrived yet. 

YES!!  Because an OT assessment should identify some of the triggers for Harry, and hopefully some solutions/strategies for you and him to help him manage.

And NO!! IQ has absolutely no correlation to ADHD or ASD or any other acronym!  Harry is a bright, sparky, loving boy who reads well, can plan, manipulate and has good social skills already.  HIs learning is affected by his condition and 'engine levels' (I'll explain another time!) not his intellegence.
Save your money for something that will help him, not assign him another label. 
If you really want to know, do a free mensa test.

Lastly, there are some good, and some not so good books out there.  When Harry has a true diagnosis, I can point you in the direction of some useful stuff.  But get a true diagnosis first, so you dont end up scaring yourself!

x
Title: Re: Update on Harry
Post by: MiriMaran on March 18, 2010, 09:09:21 pm
Good point Ruth, but the whole time I'm doing things in the back of my mind I keep reminding myself that ADHD is only guess work at the moment and may be totally irrelevant.  I've stopped looking at websites as they are so confusing and depressing.

Here is the info about the book I am waiting for.

How to Reach and Teach ADD/ADHD Children: Practical Techniques, Strategies and Interventions for Helping Children with Attention Problems and Hyperactive

Product Description
A comprehensive resource that addresses the "whole child, " as well as the team approach to meeting the needs of students with attention deficit hyperactivity disorder. Includes management techniques that promote on–task behavior and language arts, whole language, and multi–sensory instruction strategies that maintain student attention and keep students involved.
From the Back Cover
For educators, specialists, and parents, here is a remarkable new resource packed with classroom–tested techniques and practical know–how for helping children with attention deficit disorders––with or without hyperactivity.
Focusing on the "whole child" and a team approach that lets you guide these children toward academic as well as personal success, the book shows you...

What is ADD/ADHD and how to identify it
Successful home–school itnervention plans based on actual case studies
How to get and keep student attention & increase on–task behavior
Specific management techniques that prevent behavioral problems
What works best to improve students′ organization and study skills
Proven multi–sensory activities and methods for language arts, math, and writing instruction
How to reach students through learning styles awareness, environmental modifications, and cooperative learning situations
Various medications, their effects, and school management of them
How to modify assignments and tests, and accommodate the child with writing difficulties
Numerous strategies on how to manage kindergarten children
How to use relaxation, guided imagery, visualization techniques, and music to get the most from your students
How to avoid problems during transitional and noninstructional times
A Parent′s Story that deals with the many issues, feelings, and struggles that families face when a child has this disorder
Interviews with teens and adults who share what made a significant difference in their lives
Plus you get sample contracts, charts, a student self–evaluation checklist, sample letters and documentation on communicating with physicians and agencies, a learning styles interview to use with children, obseration sheets, and an outline for a social skills planning unit to help you successfully manage the impulsive, overly stimulated, "quick–to–anger" child as well as the child who just can′t focus.

In short, this complete resource is like having an expert at your side to answer virtually any question on how to reach and teach children who need your help and understanding!

What do you reckon?
Title: Re: Update on Harry
Post by: doganjo on March 19, 2010, 09:58:58 pm
I bought a local paper today and found an advert for 'smarter scotland'  They have a scheme called 'just ask' for all parents to contact them if their children have any difficulties at school.
Don't know if it's of any interest to Kaitlin or Harry - but here's the phone number and web address - 0845 123 2303 www.infoscotland.com/justask
Title: Re: Update on Harry
Post by: MiriMaran on March 20, 2010, 08:55:58 pm
Brilliant thank you
Title: Re: Update on Harry
Post by: MiriMaran on March 28, 2010, 08:30:31 pm
Keep your fingers crossed for Tuesday 1145 Harry's referral has finally come through after they had a cancellation.  Being a pushy Mum does work!  Felt good too!!!  I have a huge list of questions and issues for discussion.
Title: Re: Update on Harry
Post by: Wizard on March 29, 2010, 09:48:40 am
Is this two good things to happen for you this week lass? Keep at them they will be more interested even if only to shut you up.I know I've been there.Best wishes from Georg and Kath xxx
Title: Re: Update on Harry
Post by: little blue on March 29, 2010, 07:05:17 pm
be thinking of you tomorrow     x
Title: Re: Update on Harry
Post by: MiriMaran on March 30, 2010, 08:50:31 pm
We had an hour session with the Community Paediatrician today.  Harry was brilliantly well behaved as she fired questions at me from pregnancy through to now, how we discipline him, how he reacts to certain things.  She asked Harry about school, his friends, clubs he goes to e.t.c and she explained who she was and why he was meeting her.  She weighed and measured Harry, listened to his heart, checked blood pressure to rule out any medical problems.  He is also going to have a urine test and a hearing test.  I took Harry's Home/School Diary, his IEP and a list of 30 issues I was concerned about!!  Harry was very calm, but at the end of the session he commented that he is very busy.

I then had a 40 minute phone call with her once Harry was back in school as I told her that I felt uncomfortable discussing some things in front of Harry.  At the end of the phone call she said that if all other things are ruled out it looks like that he may have ADHD and she is sending us a leaflet and details for a local support group.  She also said that whilst he was very well behaved he wasn't normal (whatever that means).  A questionairre will be sent to us and the school and then we will meet her again in a couple of months where she will presumably she will have collated all the info and will be able to give a diagnosis.  She has also offered to be at the next IEP meeting which will take place in April.

Harry was hilarious at one point.  I was telling the woman about when one of Harry's teachers said to me "Well I've dealt with children much worse than Harry - children who spit and throw chairs".  "Oh like ****!" Harry pipes up, naming the child he keeps having run ins with!! ;D  It did make me giggle.

So I'm feeling more positive as at least things are now moving forward.  Harry goes to see the Cranial Osteopath again on Thursday so it will be interesting to see if he has a really bad week following the appointment like he did the last time.

Title: Re: Update on Harry
Post by: little blue on March 30, 2010, 08:54:21 pm
good, glad it went well.
hope it continues to do so!
x
Title: Re: Update on Harry
Post by: Wizard on March 30, 2010, 09:27:41 pm
Nice to hear you are at last getting somewhere miri Did you have a Yellow Knob job? :D :farmer:
Title: Re: Update on Harry
Post by: HappyHippy on April 08, 2010, 01:28:43 pm
Hi Miri,
I'm glad the appointment went well and I hope she's able to get things moving quickly for you both. We've had a few appointments with our Paediatrician - I was hopefull she'd make the diagnosis for Kaitlin (could have saved SO much time ;)) but she decided after about 18 months that Kaitlin was a 'complex' case and she wasn't confident of making a diagnosis on her own  :-\ Hence all the faffing about with referalls to specialist ADHD and autism services. We've FINALLY gotten our appointment for 27th April YEE HA !
But here's an example of how 'efficently' things run up here  ::) I phoned to chase up the appointment, "oh yes Mrs McKay, I'll pass your concerns onto the team" a week later I get a letter saying they're now able to offer an appointment and if I still want to go ahead can I phone the number. So I phone the number, expecting to make an appointment, "oh right, I'll pass that on to the team" another week later another letter comes through with the appointment - BUT I still have to phone to confirm that this is suitable. So by my counting that's three phonecalls and 2 letters to acomplish what could have been done in 1 phonecall - how's that for best use of NHS resources  >:( (Sorry :-[ Rant over !)
How did the crainial massage go by the way ? Was the week following it any better this time round ?
Title: Re: Update on Harry
Post by: MiriMaran on April 08, 2010, 08:55:30 pm
Typical NHS Karen, but at least you have the appointment to look forward to.  I felt so much more positive when I had a date to work towards.  Harry has had a tough week after the Cranial Osteopath.  Infact he was in the School's Out Club last Tuesday and pushed a child who hit his head on a door frame and needed butterfly stitches.  Why is it always Harry?  The two of them were just mucking about and it was an accident, but somehow accidents like this follow Harry around!
Title: Re: Update on Harry
Post by: Wizard on April 09, 2010, 08:33:30 am
Sypathy extended from Kath and I to both. Not quite on track but you ehnt tode me ow the yellow nob guz Miri  ::) :-\ :D :farmer:
Title: Re: Update on Harry
Post by: HappyHippy on April 17, 2010, 03:38:35 pm
I finally got the letter I've been waiting for this morning  ;D ;D ;D
Kaitlin has been offered a place in the Autistic centre at a nearby school, starting after the summer break. I know it's maybe not everyone's idea of great news, but I'm so happy that at last she'll get more 1 to 1 attention, be in a more secure environment and hopefully get something out of her education. And I'm ever hopefull that it'll have a knock on effect at home - if she's more settled there, she might be more settled here  ;) Fingers crossed.
We've still got rounds of appointments to go with ADHD and ASD assesments - but I feel like finally something's happening !
Title: Re: Update on Harry
Post by: doganjo on April 17, 2010, 05:09:23 pm
Thta's great news, Karen, I'm really pleased fro you and Kaitlin, you've worked hard for this.  She's a lovely wee lass.
Title: Re: Update on Harry
Post by: little blue on April 17, 2010, 05:11:59 pm
good for you and Kaitlin!
I'd have to say specialist education is great (it pays my wages!) and I hope it works out for your family.
Don't expect it to work out straight away, but hopefully as you say the secure environment and some specialist help will be just what is needed...
Title: Re: Update on Harry
Post by: MiriMaran on April 17, 2010, 08:46:51 pm
Wow fantastic news for you guys - its just what you needed.  It always helps to have something to work towards and I'm sure once she's settled it will make a huge difference at home.  The staff will have so much experience and ideas of how to handle her by this time next year you household will feel much calmer except of course that bump will have arrived!! ;D

Anyway very pleased for you.